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Arachnoid Cyst in my brain *UPDATE*

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beast rider
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PostPosted: 10:10 - 03 Nov 2014    Post subject: Arachnoid Cyst in my brain *UPDATE* Reply with quote

In Feb this year I went to work and started to violently throw up, a few days later I started to get very dizzy and unsteady on my feet.

At the time I was originally diagnosed with a stomach bug and when this didn't go away after a week I was diagnosed with Vertigo, given tablets and sent on my not so jolly way.

This went on for four weeks until i decided I needed a new GP as my old one didn't seem to care that I was vomiting daily and had lost over a stone in weight, they even told me that as I was only being sick once a day it was ok for me to go back to driving a bus.

Anyway my new GP sent me for various blood tests and other bodily fluid tests over the next few months with nothing coming back, eventually I was referred to a gastroenterologist who stuck a camera down my throat and decided that this wasn't a gastro problem, he then passed me onto neurology.

Now onto the most recent event

Last Monday 27th oct I was sent for an MRI of my head, on Wed 29th I get a phone call from the Head neurologists secretary asking me to come back to the hospital Thurs 30th at 9am to meet with the Dr. This of course made me panic a bit and I can quite honestly say I broke down for a while thinking that I has a huge brain tumor and that I would drop dead at any moment.

Thursday morning I sat In this Dr's office while he poked and prodded, checking various reflexes when he finished we sat down and he showed me the MRI images. The area that concerned him most was between the cerebrum and the cerebellum where there is a large "growth". I was told to him it looked like a cyst and not cancerous but more tests were needed, he was having a meeting with the neuro team at Kings college hospital to discus my case more because the growth is quite large and is pressing on my cerebellum which is causing the nausea, vomiting and dizziness.

Friday 31st I get a phone call asking me to go back to Darent Valley hospital for a CT body scan "just to make sure they weren't going to miss anything" and on Fri afternoon I get a call asking me to go and meet the surgeon today (monday 3rd Nov) at 4pm.

Over the weekend i have done some research and from what I can gather if it is just a cyst it is most likely to be an Arachnoid cyst which is quite common but does require brain surgery to drain or remove it, because of the surgery I have been instructed to surrender my license to the DVLA and I'm not likely to get it back within 6 months, as a bus driver with no driving license it looks like I'm likely to lose my job through this as well.

Im going to update this post as and when if anyone is interested, but its more as a release for myself.

Thanks for reading and any advice or experience will be gratefully received.


Last edited by beast rider on 10:48 - 22 Jan 2015; edited 1 time in total
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Tungtvann
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PostPosted: 10:15 - 03 Nov 2014    Post subject: Reply with quote

That's really rough, sorry to hear about that. Hopefully it's something easily treatable and they can get it sorted for you soon. Regardless, I imagine it's no easy thing to deal with. Will you receive any support if you're not able to work?

Good luck and get well soon.
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Nash GT
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PostPosted: 10:18 - 03 Nov 2014    Post subject: Reply with quote

Sorry to hear fella, shame about having to surrender the license and possibly loosing the job.

would it be worth talking to your employer about sick leave rather than loosing the job?

good luck and all the best.
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bugeye_bob
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PostPosted: 10:19 - 03 Nov 2014    Post subject: Reply with quote

Good luck with it all,
It must be a scary time for you and your family.
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Ste
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PostPosted: 10:23 - 03 Nov 2014    Post subject: Reply with quote

At least it's not bad aids. Wink

At this point it's probably not entirely their remit but Headway should/might be able to offer you help/advice/support. Thumbs Up

Voluntarily surrendering your license is better than having it revoked so that's the thing to do. I would have thought it'll be longer than six months until you're eligible to get it back but that's something to worry about when you reach that point.
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beast rider
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PostPosted: 10:26 - 03 Nov 2014    Post subject: Reply with quote

NashGT wrote:

would it be worth talking to your employer about sick leave rather than loosing the job?


Sadly I have been working there long enough that they will only pay me sick pay for up to 12 weeks, anything more then that and they will look to medically dismiss me
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mjn51
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PostPosted: 10:27 - 03 Nov 2014    Post subject: Reply with quote

Tough news, but at least they have found it.
GWS
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Nash GT
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PostPosted: 10:34 - 03 Nov 2014    Post subject: Reply with quote

beast rider wrote:
NashGT wrote:

would it be worth talking to your employer about sick leave rather than loosing the job?


Sadly I have been working there long enough that they will only pay me sick pay for up to 12 weeks, anything more then that and they will look to medically dismiss me


Have the chat in any case, the may allow you unpaid recovery time, my employers do, they will only pay 12weeks sick pay but will allow unpaid recovery time and will only look into dismissal if there is no hope of recovery.

I was off for 6 months with knee and hip replacement as had to recover from 1st op in order to undertake the 2nd one.

I know each employer is different but is worth having the talk so that you know where you stand.

Are you member of an Union? they can give you advice on this, also in some cases they can help with loss of income through long term sick

All the best
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Last edited by Nash GT on 10:35 - 03 Nov 2014; edited 1 time in total
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Ste
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PostPosted: 10:34 - 03 Nov 2014    Post subject: Reply with quote

I'm guessing here but would it be better for future employment prospects if you were to resign as opposed to being dismissed?
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Nash GT
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PostPosted: 10:36 - 03 Nov 2014    Post subject: Reply with quote

Ste wrote:
I'm guessing here but would it be better for future employment prospects if you were to resign as opposed to being dismissed?


You could be onto something here, but that would be my very last option.
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beast rider
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PostPosted: 10:42 - 03 Nov 2014    Post subject: Reply with quote

Ste wrote:
I'm guessing here but would it be better for future employment prospects if you were to resign as opposed to being dismissed?


That would be an option but if I was to do that I would then go back on a reduced rate of pay and I wouldn't have all the benefits all the long term employment benefits that I currently have.
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Nash GT
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PostPosted: 10:46 - 03 Nov 2014    Post subject: Reply with quote

yeah fella that was exactly my point, I would explore every other avenue first.

Which I get a feeling is what you want to do, one thing I agree with is Volunteering the license to the DVLA and even then I would triple check with the consultant that is absolutely necessary before running off to the DVLA
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Ste
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PostPosted: 10:46 - 03 Nov 2014    Post subject: Reply with quote

Do you know what the situation would be for being rehired at a later date after being medically dismissed?
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Nash GT
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PostPosted: 10:58 - 03 Nov 2014    Post subject: Reply with quote

very uphill indeed, hence I'm advising him to do as much research as possible before packing it all in, including an in depth chat with his employers about his options.

OP will loose out on all his legacy wage pack, terms and conditions if he resigns and reapplies once fit for work again
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beast rider
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PostPosted: 11:04 - 03 Nov 2014    Post subject: Reply with quote

NashGT:Dr's have said " No driving and surrender license"

Ste:as soon as my contract is terminated I have to start again from the bottom, I will admit that I hate my job but the money is good and it suits my needs with child care and such.
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Nash GT
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PostPosted: 11:11 - 03 Nov 2014    Post subject: Reply with quote

Fair enough on the license, I certainly best to surrender than to be revoked.

As for the Job 100% understand and agree, hence my advice/views/recommendations
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lihp
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PostPosted: 11:12 - 03 Nov 2014    Post subject: Reply with quote

Would you be able to regain the license to drive a commercial vehicle again?

Or is that going to take longer than the 6 months?
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Nash GT
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PostPosted: 11:17 - 03 Nov 2014    Post subject: Reply with quote

lihp wrote:
Would you be able to regain the license to drive a commercial vehicle again?

Or is that going to take longer than the 6 months?


You've raised a very valid point there, I would think he can but then again that for the Consultant and DVLA to confirm.

That being said, License has to be regained after the recovery time has lapse and OP has been given the all clear
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Ste
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PostPosted: 11:27 - 03 Nov 2014    Post subject: Reply with quote

It'd be six months for group one license entitlements, group two is two years after treatment and that's if there's nothing that could impair driving.
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chris-red
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PostPosted: 11:34 - 03 Nov 2014    Post subject: Reply with quote

Don't have any advice my Good luck and GWS
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Nash GT
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PostPosted: 11:35 - 03 Nov 2014    Post subject: Reply with quote

Ste wrote:
It'd be six months for group one license entitlements, group two is two years after treatment and that's if there's nothing that could impair driving.


Hmmm that might be the proverbial spanner in the works Neutral
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Llama-Farmer
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PostPosted: 11:41 - 03 Nov 2014    Post subject: Reply with quote

Sorry to hear about that.


Are you a union member? It could be worth talking to a representative who may be able to help you in terms of employment issues.

They could be the difference between getting you on long-term sick leave until you get your licence back, and losing your job.
Even if you're not a union member, would be worth trying to speak to a rep, they may still be able to advise you or give you some direction, even if they don't act directly on your behalf.


Hope it gets sorted for you quickly though and you're back feeling better soon.
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Rogerborg
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PostPosted: 11:57 - 03 Nov 2014    Post subject: Reply with quote

I hope every heath professional who fobbed you off is thoroughly bloody proud of themselves. Mad

All the best.
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instigator
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PostPosted: 13:44 - 03 Nov 2014    Post subject: Reply with quote

chris-red wrote:
Don't have any advice my Good luck and GWS


Likewise, all the best to you mate, keep us updated with your progress. Thumbs Up Thumbs Up
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beast rider
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PostPosted: 14:00 - 03 Nov 2014    Post subject: Reply with quote

Im planning on going in to work tomorrow and sit down with my boss and union rep to discuss what happens next, I want to get todays meeting with the neurosurgeon out the way before I tell my work what is going on.
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