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Treatment keeps girl child-sized

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ken
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PostPosted: 15:47 - 04 Jan 2007    Post subject: Treatment keeps girl child-sized Reply with quote

this story made me have a little think

https://news.bbc.co.uk/1/hi/world/americas/6229799.stm

I have some questions here, is this something that you could and would do for your child, if they were in this little girl’s predicament?

Also could this be used in some way to stop the ageing process, or is this girl going to have a 60 year old face (if she lives that long obviously) on her 9 year old body?

And there also seems to be a lot of sexual related comments made, i.e. about removing her sexual “bits and bobs” incase of sexual abuse, bearing in mind she can’t move her head off the pillow, which could be interoperated that the “anonymous parents” might want no evidence of abuse, yes that’s very cynical I know
In reality it’s my opinion that that they want to make there lives as easy as possible, as it is a very demanding job looking after disable people

Any thoughts
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ginguar
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PostPosted: 15:51 - 04 Jan 2007    Post subject: Reply with quote

I have mixed opinions about this. I manage a care home for people with learning disabilities and know how demanding it can be. It seems slightly unethical to try and keep her small but one of the main reasons parents give up their disabled offspring is because they become too big for them to physically care for. That said where does it stop, cut off her arms and legs and she'll be even easier to care for...
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msgander
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PostPosted: 15:52 - 04 Jan 2007    Post subject: Reply with quote

I dont really think anyone can comment until they are placed in that position, I see arguments from both sides....
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palmer
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PostPosted: 15:55 - 04 Jan 2007    Post subject: Reply with quote

Wouldn't want my child to live such a 'life'.
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J0Al1
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PostPosted: 15:58 - 04 Jan 2007    Post subject: Reply with quote

It's really hard to comment. I can only say I would think any parent would take all the advise they are given weigh up the pros and conns and make the best decision they can for their child. As anyone with kids will understand how devistatingly hard these type of desicions must be.
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tatters
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PostPosted: 16:12 - 04 Jan 2007    Post subject: Reply with quote

palmer wrote:
Wouldn't want my child to live such a 'life'.



Same here, if l had a kid that was in a vegetable state l would want them put out of there misery.
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feef
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PostPosted: 16:13 - 04 Jan 2007    Post subject: Reply with quote

ginguar wrote:
I have mixed opinions about this. I manage a care home for people with learning disabilities and know how demanding it can be. It seems slightly unethical to try and keep her small but one of the main reasons parents give up their disabled offspring is because they become too big for them to physically care for. That said where does it stop, cut off her arms and legs and she'll be even easier to care for...


the size issue isn't purely down to ease of movement.. She has the mind of a child, and always will have, so it seems logical to keep her physically a child. There's also the question over a fully grown, sexually developed and fertile woman with the mind of an infant. I think, in reality, what they have done is not a bad thing.

It's also easier to find carers for children, so in the longer term, when her parents are gone, it'll be more likely they can find someone to look after her.

a
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UrbanRacer
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PostPosted: 16:15 - 04 Jan 2007    Post subject: Reply with quote

tatters wrote:
palmer wrote:
Wouldn't want my child to live such a 'life'.



Same here, if l had a kid that was in a vegetable state l would want them put out of there misery.


controversial!! Shocked
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Annabella
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PostPosted: 16:16 - 04 Jan 2007    Post subject: Re: Treatment keeps girl child-sized Reply with quote

ken wrote:
And there also seems to be a lot of sexual related comments made, i.e. about removing her sexual “bits and bobs” incase of sexual abuse,


I read this on the Telegraph website, and didn't interpret the historectomy in any way other than to prevent the girl passing through puberty.

It does seem a very strange thing to do, but if her growth were not attenuated they would be unable to care for her adequately.

We must remember that this 'treatment' is being provided in America where all healthcare is paid for, and as such you choose what you want. I don't believe that the NHS would nor could fund such a method. It is difficult to know if this is beneficial for the child, but it does mean that she is able to stay in the care of her family, which surely is better than that of a generic residential home?
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ken
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PostPosted: 16:30 - 04 Jan 2007    Post subject: Reply with quote

what I would like to know is will she grow old in a childs body?

if she stays looking young, you would say Goodbye to ageing cream


My answer to weather I would do this is NO

let nature take it's natural course, it will get harder for the parents, but so what,

I wouldn’t have my child cut and shut, for the benefit of making my life easy

I would deal with it, oh and seek sanctuary in alcohol of course
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Annabella
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PostPosted: 16:34 - 04 Jan 2007    Post subject: Reply with quote

ken wrote:
I wouldn’t have my child cut and shut, for the benefit of making my life easy


The parents' decision to prevent their child from growing was because they believed it would benefit her. They would not be able to care for an adult and so she would have to be looked after elsewhere, away from her family. Whilst they are unsure if she recognises them she is currently able to be present at family activities and enjoys listening to music etc.. these are personal things that the parents know and enjoy being able to grant her - that level of personal care is never provided for in a care home.
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Visitor Q
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PostPosted: 16:36 - 04 Jan 2007    Post subject: Reply with quote

UrbanRacer wrote:
tatters wrote:


Same here, if l had a kid that was in a vegetable state l would want them put out of there misery.


controversial!! Shocked


And... ?

It's still true.
Yes there are plenty of people who are mentally handicapped but still have the capacity to outwit most sun readers and can have a normal (ish) life.
Thats fine.

When someones almost just being kept alive for the sake of it its terrible.

I must admit its a personal grudge of mine, blind/paraplegic/deaf no problem with. They can usually have a pretty good quality of life.
Even quadraplegics like stephen hawkins can still have /a/ life.

But i remember being in a club in bangor, and a quite attractive young girl had been taken out to a nightclub by her family. She was stuck in a chair like stephen hawkins, looking vacantly, in the middle of the dance floor, with her family just raising her hands in time to the music....

I remember at the time it just depressed the hell out of me.

If anyone thinks its controversial to not wish that on their children, then they have issues.
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ken
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PostPosted: 16:50 - 04 Jan 2007    Post subject: Reply with quote

Annabella wrote:
Quote:
The parents' decision to prevent their child from growing was because they believed it would benefit her

That’s what they say, so it’s a case of freezing her in time (so to speak) I don’t think its about her going in a home in later life, chances are she will not get very big as I doubt she will eat much food as she uses very little energy, and will not be using many muscles, so will still be managble

I hate to say it but will, maybe it’s better to have a invalided child, than it is to invalided grown up
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palmer
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PostPosted: 16:50 - 04 Jan 2007    Post subject: Reply with quote

tatters wrote:
palmer wrote:
Wouldn't want my child to live such a 'life'.



Same here, if l had a kid that was in a vegetable state l would want them put out of there misery.


I would WANT to 'put them out of their misery' ... but i don't think i'd be able too...

I just hope i never have to make such a decision.

All i know is if i was as bad as that, i would rather die.
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Mister James
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PostPosted: 23:24 - 04 Jan 2007    Post subject: Reply with quote

palmer wrote:

All i know is if i was as bad as that, i would rather die.


You wouldn't, because you'd have a mental age of 3 months, and be unable to grasp any concept at all, let alone relative quality of life.

Personally, on the limited information we have access to, it sounds like the parents have made the best of a bad deal, and taken an action they genuinely believe is in their kid's interest. I suppose only time will tell, but we will all have lost interest long before the results of all this become apparent.


Annabella wrote:

I read this on the Telegraph website,


*sigh* A girl that reads the Torygraph! If only there were more like you out there!
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Annabella
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PostPosted: 11:27 - 05 Jan 2007    Post subject: Reply with quote

Mister James wrote:

*sigh* A girl that reads the Torygraph! If only there were more like you out there!


I'd like to point out that due to the biased content of almost every newspaper I attempt to read at least the telegraph, independent and look at the BBC website for pretty pictures Smile
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tribal_tiger
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PostPosted: 12:28 - 05 Jan 2007    Post subject: Reply with quote

I don't think anyone can really know for sure what they would do until they are in that situation. Morals are all well and good, but when your having to deal with a situation like this day after day your views would probably change very quickly.


What i want to know is if this stuff could be used on kittens? Cats are great but they loose some of their fun when they grow up! Who here would want a kitten that never grew up? EVERYONE!

You could even expand and open a pet shop selling perminant baby animal cuteness. Go get a baby tiger or a baby polar bear!

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Dragonfly
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PostPosted: 14:18 - 05 Jan 2007    Post subject: Reply with quote

I have only been in the situation where i have had to look after one person with serious disabilties. Their parents cant cope with 24 hour care of feeding,changing,bathing,dresssing and basically everything they cant do for themselfs. Sadly most are placed in the care home and rarely visited and forgotten about.

I am not sure of my oppion on this case but part of me dosnt agree with it as she will be left in this state for a long time and most care homes are not great with care and staffing, if the parents chose to look after her for the rest of her days well they will be very tired people, eventually she will go into care. I need all the facts first and as alot said to be in the parents situation.
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Annabella
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PostPosted: 15:23 - 05 Jan 2007    Post subject: Reply with quote

There is more information on the website that the family started which can be found here .

The website is written by the parents of Ashley, and clearly they are intelligent, balanced people. They believe that the treatment they have chosen for their child is for her benefit entirely.

There are also some very lovely photographs of Ashley showing her range of facial expressions and obvious emotions. She appears very happy and is clearly loved.
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Vincey B
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PostPosted: 15:35 - 05 Jan 2007    Post subject: Reply with quote

Its annoyed me a lot how this has been reported (especially ITV news).

They did the story about the American family then cut straight to an English family where they had a child who was mentally disabled but otherwise able to walk around and function physically and asked if they would like to do the same.

Surely the issue here is that the American girl has the mental and physical abilities of a 3 month old baby, and cannot even move her head, let alone move about in a bed. It doesnt really make any sense to compare to other cases unless they are similarly disabled.
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