NHS data upload - your health data flogged off

[ScaredyCat]

...and it wont be anonymised*, you need to opt-out if you don't want it to happen and you need to do it quickly, before it's too late.

This site gives a rather basic info but makes it a little clearer if you don't fancy wading through government documents. It also provides links to opt-out forms ( or just get it here https://dl.dropboxusercontent.com/u/14156524/caredata_trifold.pdf

https://www.care-data.info/

[Robby]

I assume the intention here is to scare monger people into thinking their personal data will be sold to the lowest bidder who will do what they want with it - highly customised junk mail for your particular medical condition and the like.

This is highly unlikely. I deal with this sort of thing in my day job, if the information is used for a purpose other than the one it was collected for, the use is breaching the data protection act. To use the data for different reason requires consent. If the consent is being obtained through an opt-out system rather than an opt-in system, the new use for the data is going to be close to the original use. No-one wants to invoke the wrath of the information commissioner.

So maybe your data will be given or sold to research companies or universities. This happens quite a lot as well, but it will be annonymised. The data may be extracted and held by the NHS as plain data, but very few companies or research institutions will accept it in this format - if there is a breach and someone's details get out, they have to do a lot of work to fix the problem. They prefer to be given an anonymised data set and they still treat it as if it was personal data.

[Pete.]

Phamaceutical companies have very little in the way of scruples, and the DPA would be difficult to enforce for a foreign company. Supposing a far-eastern company got hold of the personal details of millions of potential customers for a particular ailment. They would have a tailor-made customer base to spam with targeted mail with a fantastic conversion rate.
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a.k.a 'Geri'

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[Rogerborg]

[Tracey Suntan-King]

[raak]

cheers for the heads up scaredycat.

mentioned it on another forum, seems leaflet are dropping through letterboxes as we speak
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[Hetzer]

Strangely enough I had a letter addressed to me by name this morning from a private company offering me a 'life scan'. One week after being in hospital.
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