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The999Kid
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PostPosted: 13:13 - 24 Aug 2009    Post subject: Sleeping Problems - Seizures Reply with quote

Hey Folks.

Im currently in a spot of worrying about my future health... After spending a few nights at a friends house and sharing her double bed most nights, she has informed me that i might have a mildly worrying problem.

It would appear that im having mild Tonic-Clonic seizures whilst sleeping. Now i can confidently say that i have never had a seizure whilst awake, during normal day to day activities or other similar times, its only happening whilst i am sleeping. According to her they happen after about 2-3 hours sleep.

My friend is a 3rd yr Medical student on her way to becoming a doctor, and is far more qualified than i to diagnose such things. I trust her implicitly to let me know anything she notices about my health as i see her fairly regularly and it appears to be a fairly new occurence...

Any ideas?
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pickled
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PostPosted: 13:50 - 24 Aug 2009    Post subject: Reply with quote

what exactly is happening? (for those with no medical training Wink )
and do you snore? Laughing
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ClaireBear
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PostPosted: 14:05 - 24 Aug 2009    Post subject: Reply with quote

Without doubting your friend, I would get some advice from your doctor/GP asap. They will be able to refer you to a specialist particularly because you are having a seizure so often.
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pickled
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PostPosted: 14:07 - 24 Aug 2009    Post subject: Reply with quote

googled Wink

sorry previously known as Grand Mal,
I would go see your GP, strange I would think if its what was known as Grand Mal and your not having any during the day?
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stinkwheel
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PostPosted: 14:31 - 24 Aug 2009    Post subject: Reply with quote

NB. If you are diagnosed as having had Grande mal seizures (which they can tell from an EEG scan) you will almost certainly loose your driving licence.

If they are only sleep seizures, you'll probably get it back.
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Ste
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PostPosted: 15:01 - 24 Aug 2009    Post subject: Reply with quote

Go to your GP, you'll get sent to see the neurology department at hospital who'll ask questions, take blood, do an EEG, and then you'll be started on drugs.

Your license will be revoked if you're having seizures and you have to be seizure free for 12 months before you'll be allowed it back. With your driving license you can either fill in the DVLA questionnaire forms and they'll make a decision about revoking your license. Or you can voluntarily surrender it, which is a better option because if you're having seizures the DVLA will revoke your license.

If you've surrendered it then the process of getting back on the road is easier. If your license is revoked then once you've been seizure free for 12 months you can apply for it back, they'll make checks with the consultant, then your get sent your license. But if you surrendered your license then once you've been given the all clear from the consultant, you fill out the application forms for getting your license back and once you've posted them you're allowed to drive. So surrendering your license means you'll be back on the road sooner. Smile

Then there's the final kick in the teeth; once you've got your license back you'll have to tell insurance companies about your epilepsy cos it's a DVLA notifiable medical condition. Sad

Did you friend say how long the seizures were lasting for?

When seizures continue past about 15 minutes it's advisable to call for an ambulance who'll take steps to stop the seizure from continuing. Also when having a seizure it's important for anyone present to watch out that you're breathing properly because that's one of the dangers of seizures.

I presume as your friend knows about this stuff she's already sent you to see your GP because of the risks of prolonged seizures? Neutral
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ClaireBear
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PostPosted: 15:22 - 24 Aug 2009    Post subject: Reply with quote

Ste wrote:
I presume as your friend knows about this stuff she's already sent you to see your GP because of the risks of prolonged seizures? Neutral


Lets hope so Confused
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tshort2007
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PostPosted: 18:54 - 24 Aug 2009    Post subject: Re: Sleeping Problems - Seizures Reply with quote

Quote:
After spending a few nights at a friends house and sharing her double bed most nights


Is there any reason for this? You having a hard time at work? You broke up with a patner? anything to cause worry or stress.

Reason i ask is i had similar problems wheni was going through a very rough patch with my ex. I was diagnosed with stress induced deprssion which i was treated for, and the seisures stopped

Quote:
I'm currently in a spot of worrying about my future health


Dont. If you are going through a hard time, This WILL make it worse, and i'm talkin from experiance!
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The999Kid
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PostPosted: 19:18 - 24 Aug 2009    Post subject: Reply with quote

Ste wrote:
Go to your GP, you'll get sent to see the neurology department at hospital who'll ask questions, take blood, do an EEG, and then you'll be started on drugs.

Your license will be revoked if you're having seizures and you have to be seizure free for 12 months before you'll be allowed it back. With your driving license you can either fill in the DVLA questionnaire forms and they'll make a decision about revoking your license. Or you can voluntarily surrender it, which is a better option because if you're having seizures the DVLA will revoke your license.


Oh.... Sad Bye Bye Job then.....

Ste wrote:

If you've surrendered it then the process of getting back on the road is easier. If your license is revoked then once you've been seizure free for 12 months you can apply for it back, they'll make checks with the consultant, then your get sent your license. But if you surrendered your license then once you've been given the all clear from the consultant, you fill out the application forms for getting your license back and once you've posted them you're allowed to drive. So surrendering your license means you'll be back on the road sooner. Smile


A Mild upside should everything go tits up... Though AFAIK the seizures are idiomatic (of unknown cause)

Ste wrote:

Then there's the final kick in the teeth; once you've got your license back you'll have to tell insurance companies about your epilepsy cos it's a DVLA notifiable medical condition. Sad

Every fibre of my being is hoping its not epilepsy...

Ste wrote:

Did you friend say how long the seizures were lasting for?

IIRC The longest was about a minute... but most last between 20-30 seconds, usually start occuring after i've been asleep for about 2-3 hours and only occur once or twice a night. these observations based on 3 non consecutive nights of observed sezures,

Ste wrote:
When seizures continue past about 15 minutes it's advisable to call for an ambulance who'll take steps to stop the seizure from continuing. Also when having a seizure it's important for anyone present to watch out that you're breathing properly because that's one of the dangers of seizures.
Pretty much a given seen as she is on her way to being a doctor and i'm an EMT

Ste wrote:
I presume as your friend knows about this stuff she's already sent you to see your GP because of the risks of prolonged seizures? Neutral
erm... she advised me to see my GP but after reading some of this stuff about the possibility of me losing my license due to diagnosis of epilepsy im not so sure i want to.... Shocked they cant Confiscate for something neither of us know about...?
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The999Kid
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PostPosted: 19:29 - 24 Aug 2009    Post subject: Re: Sleeping Problems - Seizures Reply with quote

tshort2007 wrote:
Quote:
After spending a few nights at a friends house and sharing her double bed most nights


Is there any reason for this? You having a hard time at work? You broke up with a patner? anything to cause worry or stress.

Reason i ask is i had similar problems wheni was going through a very rough patch with my ex. I was diagnosed with stress induced deprssion which i was treated for, and the seisures stopped


Nothing particularly stressful... i had been on a date the night before if that has any significance...?
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pickled
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PostPosted: 19:34 - 24 Aug 2009    Post subject: Reply with quote

have the pair of you slept in the same bed before? I know she is medical and everything, BUT is it not possible that you are just dreaming? my EX used to wake me up some nights running in his sleep, to start with i thought he was doing something else as the bed was shakeing so much?

seriously I am not trying to make light of the situation? but it is possible since you are not having any problems while you are awake?

and without proper tests there is absolutely no way of knowing that its Epilepsy for sure
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The999Kid
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PostPosted: 19:41 - 24 Aug 2009    Post subject: Reply with quote

pickled wrote:
have the pair of you slept in the same bed before? I know she is medical and everything, BUT is it not possible that you are just dreaming? my EX used to wake me up some nights running in his sleep, to start with i thought he was doing something else as the bed was shakeing so much?


Yes we've slept in the same bed together many times before, she says its definately something new that hasnt happened during the last time we shared a bed. Its not cognitive movement, like running or miming an action... its random muscle spasms.

pickled wrote:
seriously I am not trying to make light of the situation? but it is possible since you are not having any problems while you are awake?


I completely agree with your point in that because its not affecting me during my conscious hours its probably nothing to worry about... but then again, when the occurence is so similar to full tonic-clonic episodes its at least worth checking out methinks?

pickled wrote:
and without proper tests there is absolutely no way of knowing that its Epilepsy for sure
True, but best be sure and see what a GP says.. though slightly reluctant after reading what may happen to my license if im diagnosed with epilepsy... Sad
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GhostRider
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PostPosted: 19:59 - 24 Aug 2009    Post subject: Reply with quote

Quote:
A Mild upside should everything go tits up... Though AFAIK the seizures are idiopathic (of unknown cause)


Fixed Wink

Hope the doc gives you the all clear dude, it would suck the biggest donkeys testicles if you found out you couldn't do a job you worked hard for and loved with a passion because of a health condition.

Thumbs Up

GhostRider[/b]
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Ste
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PostPosted: 20:08 - 24 Aug 2009    Post subject: Reply with quote

ProvectusIncurro wrote:
after reading some of this stuff about the possibility of me losing my license due to diagnosis of epilepsy im not so sure i want to.... they cant Confiscate for something neither of us know about...?

They won't allow you to continue driving as you've had seizures. Sad

Small chance of it happening, but having a seizure whilst riding/ driving would be very bad. You'll have to tell the DVLA as once you've seen doctors it'll all be on record.

It sucks. Sad
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ClaireBear
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PostPosted: 21:04 - 24 Aug 2009    Post subject: Reply with quote

Your medical friend should really have told you to have this investigated further, for your own safety tbh.

And to be the bearer of bad news- you have a legal requirement to inform the dvla and your insurance company of a number of medical conditions, seizures included. If you dont do this you are breaking the law, and if it were to be found that you had a seizure at the wheel, your insurance maybe void as you already knew about previous seizures you have had. Similarly, your friend should know this as well, she has a legal requirement to inform the dvla in writing that she is aware of your seizures if you decline to do so.

Sorry, but its best to stay on the right side of the law and remain healthy. Embarassed
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The999Kid
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PostPosted: 21:36 - 24 Aug 2009    Post subject: Reply with quote

GhostRider wrote:
Quote:
A Mild upside should everything go tits up... Though AFAIK the seizures are idiopathic (of unknown cause)


Fixed Wink

Hope the doc gives you the all clear dude, it would suck the biggest donkeys testicles if you found out you couldn't do a job you worked hard for and loved with a passion because of a health condition.

Thumbs Up

GhostRider[/b]


Proof that no matter how much i revise my terms and medical conditions for my job as an EMT and future Paramedic, theres always gonna be at least one that catches me out...
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NDB 19/10/1989 - 1/11/2010 |Nowhere.Elyseum wrote: I get the distinct feeling that Tim should be our secret weapon for future trolling. I don't know many people that can rip the piss in Iambic pentameter
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GhostRider
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PostPosted: 22:09 - 24 Aug 2009    Post subject: Reply with quote

ClaireBear88 wrote:
Your medical friend should really have told you to have this investigated further, for your own safety tbh.

And to be the bearer of bad news- you have a legal requirement to inform the dvla and your insurance company of a number of medical conditions, seizures included. If you dont do this you are breaking the law, and if it were to be found that you had a seizure at the wheel, your insurance maybe void as you already knew about previous seizures you have had. Similarly, your friend should know this as well, she has a legal requirement to inform the dvla in writing that she is aware of your seizures if you decline to do so.

Sorry, but its best to stay on the right side of the law and remain healthy. Embarassed


Whoa whoa whoa whoa whoa.....

His friend is a medical student, lest we forget. I wouldn't be telling the DVLA fuck all until I had a certified doctor tell me of the condition. Im wondering how many seizures his friend has correctly diagnosed in that past? Or is she merely recalling what she read in a text book for a lecture once? Though there is no doubt at all his friend means well, until a doctor has confirmed a seizure to be a seizure, the DVLA can go suck a mules dick.


I've woken up fitting a couple of times, however, I was experiencing Sleep Paralysis at the time, and in my mind I was being attacked by a 7ft black hooded figure reminiscent of Death, or had "something" sitting on my back trying to strangle me. Should I tell the DVLA of this? I'm sure everyone on the end of the phone there spent 5 years at medical school and are registered with the HPC and will be able to make a soundly judged decision to take away my licence.......

....you get my point though?

I'd even be weary of telling the doc you have had seizures whilst asleep, some choice wording really, say your friend witnessed what appeared to be seizures, but you can't be sure and are just playing it safe. Don't suggest your theories of Tonic-clonic to him either, let him be the doctor, you be the patient.


IMHO anyway

GhostRider
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I have all the characteristics of a human being: blood, flesh, skin, hair; but not a single, clear, identifiable emotion, except for greed and disgust. Something horrible is happening inside of me and I don't know why. My nightly bloodlust has overflown into my days. I feel lethal, on the verge of frenzy. I think my mask of sanity is about to slip.
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chris-red
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PostPosted: 22:18 - 24 Aug 2009    Post subject: Reply with quote

Am I the only one who wouldn't see a doctor untill it had happened during the day and actually affected me?
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The999Kid
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PostPosted: 22:37 - 24 Aug 2009    Post subject: Reply with quote

GhostRider wrote:

Whoa whoa whoa whoa whoa.....

His friend is a medical student, lest we forget. I wouldn't be telling the DVLA fuck all until I had a certified doctor tell me of the condition. Im wondering how many seizures his friend has correctly diagnosed in that past? Or is she merely recalling what she read in a text book for a lecture once? Though there is no doubt at all his friend means well, until a doctor has confirmed a seizure to be a seizure, the DVLA can go suck a mules dick.

True, im only going to the Dr begrudgingly because of a senoir staff nurse i trust with my life (with an HPC registration and a decade of experience) has said i really aught to if not for myself then for the safety of everyone else.

GhostRider wrote:

I've woken up fitting a couple of times, however, I was experiencing Sleep Paralysis at the time, and in my mind I was being attacked by a 7ft black hooded figure reminiscent of Death, or had "something" sitting on my back trying to strangle me. Should I tell the DVLA of this? I'm sure everyone on the end of the phone there spent 5 years at medical school and are registered with the HPC and will be able to make a soundly judged decision to take away my licence.......

....you get my point though?

I'd even be weary of telling the doc you have had seizures whilst asleep, some choice wording really, say your friend witnessed what appeared to be seizures, but you can't be sure and are just playing it safe. Don't suggest your theories of Tonic-clonic to him either, let him be the doctor, you be the patient.

IMHO anyway

GhostRider

My thoughts exactly, i'll work out a way of trying to skew the wording without affecting the outcome... though i dont want to be found to be hiding something if push comes to shove and i do (god forbid) end up having a daytime seizure...

chris-red wrote:
Am I the only one who wouldn't see a doctor untill it had happened during the day and actually affected me?
If it wasnt for aforementioned staff nurse i would agree with you...
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NDB 19/10/1989 - 1/11/2010 |Nowhere.Elyseum wrote: I get the distinct feeling that Tim should be our secret weapon for future trolling. I don't know many people that can rip the piss in Iambic pentameter
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GhostRider
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PostPosted: 22:38 - 24 Aug 2009    Post subject: Reply with quote

chris-red wrote:
Am I the only one who wouldn't see a doctor untill it had happened during the day and actually affected me?


Im no doctor, but would assume there might be a possiblity that catching it early may lead to early medication/measures that can be taken to prevent the condition worsening further, especially if my licence and job could be on the line because of it.

GhostRider
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I have all the characteristics of a human being: blood, flesh, skin, hair; but not a single, clear, identifiable emotion, except for greed and disgust. Something horrible is happening inside of me and I don't know why. My nightly bloodlust has overflown into my days. I feel lethal, on the verge of frenzy. I think my mask of sanity is about to slip.
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Ste
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PostPosted: 22:46 - 24 Aug 2009    Post subject: Reply with quote

Might be worth remembering the idea of telling the doctor is so that they're able to help you get appropriate treatment. Using selective wording or "choice wording" is unlikely to be the best way for them to be able to help you.

I'd expect the GP will tell you not to drive once you tell them you've had seizures. The DVLA have got all the medical rules info on their website if you want to have a look.

See your GP. Thumbs Up
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stinkwheel
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PostPosted: 22:55 - 24 Aug 2009    Post subject: Reply with quote

chris-red wrote:
Am I the only one who wouldn't see a doctor untill it had happened during the day and actually affected me?


I've told the staff at work that if I am ever involved in an accident that leads to me having a seizure or being knocked unconcious (happens in my profession, head injuries etc.), that they are to call an ambulance but under no circumstances are they to tell the medics my name.

Happened to a mate of mine who got kicked by a horse and had a fit in the ambulance as he regained conciousness. Took six months of to-ing and fro-ing to get his driving licence back, during which time he was unable to work.
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ClaireBear
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PostPosted: 07:40 - 25 Aug 2009    Post subject: Reply with quote

GhostRider wrote:
ClaireBear88 wrote:
Your medical friend should really have told you to have this investigated further, for your own safety tbh.

And to be the bearer of bad news- you have a legal requirement to inform the dvla and your insurance company of a number of medical conditions, seizures included. If you dont do this you are breaking the law, and if it were to be found that you had a seizure at the wheel, your insurance maybe void as you already knew about previous seizures you have had. Similarly, your friend should know this as well, she has a legal requirement to inform the dvla in writing that she is aware of your seizures if you decline to do so.

Sorry, but its best to stay on the right side of the law and remain healthy. Embarassed


Whoa whoa whoa whoa whoa.....

His friend is a medical student, lest we forget. I wouldn't be telling the DVLA fuck all until I had a certified doctor tell me of the condition. Im wondering how many seizures his friend has correctly diagnosed in that past? Or is she merely recalling what she read in a text book for a lecture once? Though there is no doubt at all his friend means well, until a doctor has confirmed a seizure to be a seizure, the DVLA can go suck a mules dick.


I've woken up fitting a couple of times, however, I was experiencing Sleep Paralysis at the time, and in my mind I was being attacked by a 7ft black hooded figure reminiscent of Death, or had "something" sitting on my back trying to strangle me. Should I tell the DVLA of this? I'm sure everyone on the end of the phone there spent 5 years at medical school and are registered with the HPC and will be able to make a soundly judged decision to take away my licence.......

....you get my point though?

I'd even be weary of telling the doc you have had seizures whilst asleep, some choice wording really, say your friend witnessed what appeared to be seizures, but you can't be sure and are just playing it safe. Don't suggest your theories of Tonic-clonic to him either, let him be the doctor, you be the patient.


IMHO anyway

GhostRider


My previous post stated that I think he should go to the GP first.

People were then discussing driving and so I posted about the driving simply because it seemed as though the OP was going to just ignore it.

My point was after having seen the GP and with the further diagnosis then he must tell the DVLA if it were found to be on the list of conditions they need to know about.
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The999Kid
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PostPosted: 22:35 - 25 Aug 2009    Post subject: Reply with quote

booking an appt with doctors for monday... this should be interesting....
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The999Kid
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PostPosted: 17:25 - 26 Aug 2009    Post subject: Reply with quote

The final verdict
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NDB 19/10/1989 - 1/11/2010 |Nowhere.Elyseum wrote: I get the distinct feeling that Tim should be our secret weapon for future trolling. I don't know many people that can rip the piss in Iambic pentameter
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